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Macular Degeneration and
Retinitis Pigmentosa
The facts you need to know

February is low vision, macular degeneration and retinitis pigmentosa awareness month – a good time to learn the facts about two eye diseases that cause vision loss and currently have no cure. It’s also a time to learn about a hero with the disease – Dave Steele, aka The Blind Poet - and how he has dedicated his life, and his poetry, to expanding awareness about blindness.

SPECIAL EVENTS

Facebook Live
with LVS & Dave Steele
Wednesday, February 20th

4pm EST / 9pm UK

***GRAND OPENING***
Thursday, March 7th
Timonium, MD

LOW VISION SHOP

AMD Awareness Pin: Putting the Power of Awareness into Your Hands

We are excited to collaborate with the American Macular Degeneration Foundation and unveil the design for the AMD Awareness Pin — a tool that empowers you and the whole AMD community to raise awareness at the grassroots level.

AMD Awareness Pin

IMPORTANT FACTS

Macular Degeneration affects more than 1.8 million Americans

Age related macular degeneration (AMD) is the leading cause of vision loss in the U.S. Unfortunately, there is no cure and the disease is usually not noticed until the late stages when vision loss occurs. Only regular comprehensive eye checks can lead to early detection.

Macular degeneration deteriorates the central part of the retina called the macula that focuses central vision. It’s the part of the eye that controls vision needed for reading, driving, seeing faces and the fine detail of any type of object.

Macular degeneration is a progressive disease. In the early stages there isn’t any vision loss, but as the disease progresses it causes vision to become wavy and blurred, there may be blind spots, grayness and distortions in the center vision. In the late stages some people become legally blind.

There are two types of AMD called “dry” and “wet”. The majority of cases, 85 to 90 percent, are dry. The remaining cases are wet AMD. Dry macular degeneration is a type of the disease in which blood vessels in the eye do not leak. In most cases it affects both eyes. Wet AMD is a more advanced form of the disease and causes vision loss when abnormal blood vessels grow in the eye and then leak.

PRIMARY RISK FACTORS

• Over the age of 55
• Genetics – Family history of AMD are at a higher risk
• Race – Caucasians are more likely to develop the disease than African-Americans or Hispanics/Latinos
• Smoking – Smoking doubles the risk of AMD

Retinitis Pigmentosa is a rare, inherited disorder

Retinitis pigmentosa (RP) is a progressive eye disease with no cure that causes a slow loss of vision. Sadly, it is typically diagnosed in adolescents and young adults and most people with RP are legally blind by age 40. An estimated 100,000 people in the U.S. have RP, mainly caused by gene mutations (variations) inherited from one or both parents. RP is actually a group of eye disorders that cause a breakdown and loss of cells in the retina.

Individuals with RP can experience different symptoms that can range from decreased night vision to loss of peripheral vision. The disease creates what is called “tunnel vision”, night blindness, and may also decrease the ability to see different colors.

Other symptoms include difficulty with central vision, the vision that is used for detail work such as reading or threading a needle. That is because the central area of the retina is affected. This is sometimes called macular dystrophy.

According to the Foundation Fighting Blindness, new research shows that in some types of RP, “prolonged, unprotected exposure to sunlight may accelerate vision loss. Therefore, The Foundation recommends that patients wear sunglasses and visors when outdoors.”

PRIMARY RISK FACTORS

Retinitis pigmentosa is a genetic disease, caused by mutations in genes that are active in the cells of the retina. RP is an inherited disorder so if one member of a family has the disease, other members may have it as well. If one of your family members has RP, it is important that you receive regular, thorough eye exams from an experienced ophthalmologist.

Dave Steele, The Blind Poet

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